Izzy is one of identical twins and she has Cerebral Palsy Spastic Diplegia. This means she has increased muscle tone and her legs are constantly stiff (spasticity), she suffers from pain and also has difficulty with leg movements, coordination and balance. Because of her condition, Izzy cannot walk or even stand unaided.
Selective Dorsal Rhizotomy (SDR) is a life changing complex spinal operation, the only surgical procedure that permanently reduces or eliminates stiffness and spasticity in the legs.
Spasticity causes a lot of pain, and over time, shortening of muscles and tendons, joints contractures and bone deformities.
Ursula Izzy's mum said "All we want is to give Izzy the best chance to be able to run around with her twin sister (her best friend!) and be able do all the things we all take for granted".
Matt Way, Joe's father, said; "Claire and I have been inspired by how Izzy, her family and friends have raised over £40,000.00 in such a short space of time. when you can see a solution to help your child have a better quality of life there is no stronger motivation than that. We are really excited about the crowdfunder page and we have some great pledges for people to buy".
The Crowdfunder page has been launched to boost extra funds for this year's Paddle charity pot with most of crowdfunding proceeds going to Izzy's cause.
It works by you pledging money and in return you will receive one of the fantastic donations on offer including Saltrock clothing vouchers, signed paddle posters from surfer Ben Skinner, Ben skinner signed print, big wave rider Tom Butler's signed print, T-shirts and a voucher for the Aqua Park at Retallack to name but a few.
The page must reach its total of £500 to release the money and pledges so its all or nothing and the page deadline is the 18th June so its up to you to help these great local causes.
The Joe Way Paddle for life has new supporter's for its biggest paddle and music gig to date which is on Thursday 23rd June at Newquay Harbour.
The event has always run at zero cost with everyone giving their time and services for free.
The Paddle is being supported by Newquay Fruit Sales and The Garage Co this year with both companies donating £500 each to help cover some costs and get the charity pot started.
The only elements that are not donated for free are the wrist bands, t-shirts and insurance which are vital for the event to take place.
Tony Locke, from The Garage Co, said; "As a local family business we are pleased to be supporting Joe's Paddle as it's such a great community event."
The other Local business to step up is Newquay Fruit Sales and both companies logos are on all the posters and signage, Director Rachel Craze said; "Newquay Fruit Sales are both delighted and proud of our involvement with this year’s Paddle. The fundraising that Matt and his family undertake is to be applauded and we are honoured to be a part of the effort."
Another new sponsor who has just jumped on board is POW Energy Water who have donated nearly 400 bottles of flavored water for the safety team and to help raise funds.
Charlie from POW said; "We’re excited to be a part of such a great community event and help support such good causes."
This year’s event saw a footfall of over a thousand spectators for the third year running and 400 paddlers of all ages and abilities taking part in the 200m Paddle, 1km Fun Paddle, 1km Relay, Monster SUP Tug-of-War (run by Harbour Water Sports) and the RNLI Joe Way Memorial Cup Paddle to do their bit to raise money for some of the 20 charities now supported by the Joe Way Appeal.
The sunset sessions kicked off with Steel Appeal followed by BBC's "The Voice" star Adam Issac. Ben Sutcliff and October followed on the Harbour Stage over looking the beach. Newquay band Beachfield then performed to a packed rowing club and kept the party going. The musicians all played for free and with the best of what the southwest music scene has to offer it was an electric atmosphere in the harbor which continued in the rowing club.
Titan the Robot, who is a long time supporter of the Joe Way Appeal, was back and entertained hundreds of people putting on an amazing show as always in his hometown.
Matt Way said; “As a family we live with the loss of Joe every day but one day a year we have the most amazing celebration of his short but action packed life, we are very grateful for this event and we know Joe would be very proud of what has been achieved in his memory”.
Click here for photos of the 2015 Paddle...